Public Policy


The pathway to transform adolescents and young adult cancer care and delivery.

Unfortunately, United States federal programs and agencies do not recognize 15-39 year olds as their own population which means funding, research, and outreach is divided into two camps – pediatrics and adults – with no clear line and a huge gap in care.

Our goals are simple and require little to no federal funding:

  • Officially RECOGNIZE 15 to 39-year-old cancer patients and survivors as a unique population
  • Create structural CHANGE to develop AYA cancer care and delivery as a specialized field
  • REFRAME survivorship to go beyond short-term survival rates and instead evaluate and eliminate long-term barriers that adolescent and young adult survivors face when returning to life as a contributing member of society

Through collaboration, knowledge-sharing, and raising our voices together, Critical Mass: The Young Adult Cancer Alliance works to break down barriers and promotes collaboration on initiatives that will transform adolescent and young adult cancer care and delivery.

Critical Mass is the sole unifying voice representing the entire adolescent and young adult cancer community. There is no other organization dedicated to developing public policy strategies with policymakers and leaders to address the unique needs of adolescent and young adult cancer patients and survivors.

Adolescent & Young Adult Cancer Studies & Research

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Do cancer survivors change their prescription drug use for financial reasons? Findings from a nationally representative sample in the United StatesCancer 2017 - American Cancer Society2017FreeViewJournalCancerSurvivorshipPsychosocial
Sociodemographic Disparities in Differentiated Thyroid Cancer Survival Among Adolescents and Young Adults in CaliforniaNational Center for Biotechnology2015FreeViewJournal
The shared experience of adolescent and young adult cancer patients and their caregiversPsycho-Oncology2015PremiumViewJournal
New strategies to ensure good patient–physician communication when treating adolescents and young adults with cancer: the proposed model
of the Milan Youth Project
Clinical Oncology in Adolescents and Young Adults2015FreeViewJournalPsychosocialCommunication and Decision-MakingScholarly Article
Psychosocial interventions for adolescents and young adult cancer patients: A systematic review and meta-analysisCritical Reviews in Oncology / Hematology2015FreeViewJournal
Breast Cancer in Young Women: Research Priorities. A Report of the Young Survival Coalition Research Think Tank MeetingJournal of Adolescent and Young Adult Oncology2015FreeViewMedicalFertilityDecision-making and communicationScholarly
Identifying and Addressing the Needs of Adolescents and Young Adults With CancerThe Oncologist2015FreeViewJournalPsychosocialMedicalEpidemiologyFertilityPalliative CareSurvivorship CareScholarly article
Adolescent and Young Adult (AYA) Oncology in the United States: A Specialty in Its Late AdolescenceThe National Center for Biotechnology Information2015FreeViewJournalMedicalPsychosocial Survivorship CareScholarly Article
The Clinical Trials Gap for Adolescents and Young Adults with Cancer: Recent Progress and Conceptual Framework for Continued ResearchSpringer Science + Business Media New York2015$39.95ViewJournalClinical TrialsScholarly Article
Sexuality and romantic relationships in young adult cancer survivors: satisfaction and supportive care needsPsycho-Oncology2015Free Abstract ViewJournalPsychosocialScholarly Article
Relationship between sleep problems and psychological outcomes in adolescent and young adult cancer survivors and controls2015FreeViewJournalPsychosocialMedicalSurvivorshipScholarly
US trends in survival disparities among adolescents and young adults with non-Hodgkin lymphomaJournal of Adolescent and Young Adult Oncology2015PremiumViewJournalMedicalEpidemiologyScholarly
An Innovative Website in the United States for Meeting the Emotional and Supportive Care Needs of Young Adults with CancerJournal of Adolescent and Young Adult Oncology2015FreeViewJournalPsychosocialSurvivorship careScholarly
Health behaviors, quality of life, and psychosocial health among survivors of adolescent and young adult cancers2015PremiumViewJournalPsychosocialSurvivorshipScholarly
Matched Marrow, Sibling Shadow: The Epidemiology, Experience, and Ethics of Sibling Donors of Stem CellsJournal of Adolescent and Young Adult Oncology2015FreeViewJournalEpidemiologyMedicalPsychosocialScholarly
Working Toward a Good Life as a Cancer Survivor: A Longitudinal Study on Positive Health Outcomes of a Rehabilitation Program for Young Adult Cancer Survivors2015FreeViewJournalCancer Nursing
Exploring Mediators of Physical Activity in Young Adult Cancer Survivors: Evidence from a Randomized Trial of a Facebook-Based Physical Activity InterventionJournal of Adolescent and Young Adult Oncology2015FreeViewJournalPracticalSurvivorship careScholarly
Screening young adult cancer survivors for distress with the Distress Thermometer: Comparisons with a Structured Clinical diagnostic interview2015FreeViewJournalPsychosocialScholarly
TOUCH of the healer: Defining core behaviors of oncologists that affect the mental health of patients with cancerCancer2014Free Abstract ViewJournalPsychosocial challenges and careDecision-making and communication
Patient-oncologist alliance as protection against suicidal ideation in young adults with advanced cancerCancer2014Free Abstract ViewJournalPsychosocial challenges and care
Treatment-related amenorrhea and sexual functioning in young breast cancer survivorsCancer2014Free Abstract ViewJournalCancer treatment and carePsychosocial challenges and care
Comparison of younger and older breast cancer survivors and age-matched controls on specific and overall quality of life domainsCancer2014Free Abstract ViewJournalPsychosocial challenges and care
Symptom burden among young adults with breast or colorectal cancerCancer2014Free Abstract ViewJournalCancer treatment and care
Ewing sarcoma in adolescents and young adults: diagnosis and treatmentClinical Oncology in Adolescents and Young Adults2014FreeViewJournalCancer treatment and care
Patient-centered research to inform patient-centered care for adolescents and young adults (AYAs) with cancerCancer2014Free Abstract ViewJournalPsychosocial challenges and careDecision-making and communication
Adolescent and Young Adult Series (link to all articles)Cancer2014Free Abstracts ViewJournalGeneral
Survivorship in Adolescents and Young AdultsActa Haematologica2014Free Abstract ViewJournalSurvivorshipScreening and early detection
Cancer Trials Face a Shortage of Teen, Young Adult EnrolleesAmerican Journal of Managed Care2014FreeViewJournalJournal, Clinical Trials
Health and Economic Impact of Breast Cancer Mortality in Young Women, 1970-2008American Journal of Preventive Medicine2014FreeViewJournalEpidemiologyPractical
Double Mastectomies Don't Yield Expected Results, Study FindsNPR2014FreeViewMediaCancer treatment and care
Physical, emotional, and social health differences between posttreatment young adults with cancer and matched healthy controlsCancer2014Free Abstract ViewJournalPsychosocial challenges and careSurvivorship
Peer and Romantic Relationships among Adolescent and Young Adult Survivors of Childhood Hematological Cancer: A Review of Challenges and Positive Outcomes.Acta Haematologica2014Free Abstract ViewJournalPsychosocial challenges and careFertility
For Hillsboro 30-year-old, losing her hair was harder than losing her breasts: Komen Race for the Cure 2014The Oregonian2014FreeViewMediaSurvivorship
How to heal when cancer strikes teenagersGlobe and Mail2014FreeViewMediaPsychosocial challenges and careSurvivorship
Focus under FortyASCO University2014FreeViewCMECancer treatment and carePsychosocial challenges and careFertilityDecision-making and communication
Rushing waters help young cancer patients adapt to challengesColorado Public Radio2014FreeViewMediaPsychosocial challenges and care
Cancer patients with depression 'are being overlooked'BBC News2014FreeViewMediaPsychosocial challenges and care
Health of Young Adult Cancer Survivors Compared to PeersNorthwestern University Feinberg School of Medicine2014FreeViewMediaPsychosocial challenges and careSurvivorship
Psychosexual Functioning Among Adult Female Survivors of Childhood Cancer: A Report From the Childhood Cancer Survivor StudyJournal of Clinical Oncology2014Free Abstract ViewJournalPsychosocial challenges and care
After childhood cancer, young women's sexual health may sufferReuters2014FreeViewMediaPsychosocial challenges and care
Testicular cancer incidence: an interview with Dr Rebecca Johnson, Cancer treatment and care Director, Adolescent and Young Adult Oncology Program Seattle Children's HospitalNews-Medical2014FreeViewMediaEpidemiology
The Challenges After Surviving a Childhood DiseaseWall Street Journal2014FreeViewMediaSurvivorship
Increase in testicular germ cell tumor incidence among Hispanic adolescents and young adults in the United StatesCancer2014Free Abstract ViewJournalEpidemiology
Acute Lymphoblastic Leukemia in Adolescents and Young AdultsActa Haematologica2014Free Abstract ViewJournalCancer treatment and carePsychosocial challenges and care
Augmented Berlin-Frankfurt-MŸnster therapy in adolescents and young adults (AYAs) with acute lymphoblastic leukemia (ALL)Cancer2014Free Abstract ViewJournalCancer treatment and care
Breast Cancer in Adolescent and Young Adult WomenClinical Breast Cancer2014Free Abstract ViewJournalCancer treatment and careEpidemiology
Predictors of unmet needs and psychological distress in adolescent and young adult siblings of people diagnosed with cancerPsycho-Oncology2014Free Abstract ViewJournalPsychosocial challenges and care
"The Uncertainty Is What Is Driving Me Crazy": The Tripartite Model of Uncertainty in the Adolescent and Young Adult Cancer ContextHealth Communication2014Free Abstract ViewJournalPsychosocial challenges and care
Opioid Misuse Behaviors in Adolescents and Young Adults in a Hematology/Oncology Setting.Journal of Pediatric Psychology2014Free Abstract ViewJournalCancer treatment and carePsychosocial challenges and care
Long-term survival and conditional survival of cancer patients in Japan using population-based cancer registry dataCancer Science (in process)2014Free Abstract ViewJournalEpidemiology
Internet-based psychotherapy in young adult survivors of pediatric cancer: feasibility and participants' satisfaction.Cyberpsychology, Behavior, and Social Networking (in process)2014Free Abstract ViewJournalPsychosocial challenges and care
Impact of a Teen Weekend on the Social Support Needs of Adolescents With CancerJournal of Pediatric Oncology Nursing2014Free Abstract ViewJournalPsychosocial challenges and care
Radiofrequency Ablation of Metastases from Osteosarcoma in Patients Under 25 Years: The SCFE ExperiencePediatric Hematology-Oncology2014Free Abstract ViewJournalCancer treatment and care
If You Did Not Document It, It Did Not Happen: Rates of Documentation of Discussion of Infertility Risk in Adolescent and Young Adult Oncology Patients' Medical RecordsJournal of Oncology Practice2014FreeViewJournalFertility
Nursing care for adolescents and young adults with cancer: literature review.Acta Haematologica2014Free Abstract ViewJournalPsychosocial challenges and careprogram development
Regulatory Barriers to Clinical Trial Enrollment of Adolescent and Young Adult Oncology PatientsPediatrics2014FreeViewJournalResearch
A Diversified Recruitment Approach Incorporating Social Media Leads to Research Participation Among Young Adult-Aged Female Cancer Survivors.Journal of Adolescent and Young Adult Oncology2014Free Abstract ViewJournalResearch
Breast Cancer Survivors Become Advocates Helping OthersHartford Courant2014FreeViewMediaPsychosocial challenges and care
How Celebrities Helped Me Get Through Breast CancerTime2014FreeViewMediaPsychosocial challenges and care
Sociodemographic Disparities in Quality of Life for Survivors of Adolescent and Young Adult Cancers in the Behavioral Risk Factor Surveillance System.Journal of Adolescent and Young Adult Oncology2014Free Abstract ViewJournalPsychosocial challenges and care
ENCCA WP17-WP7 consensus paper on teenagers and young adults (TYA) with bone sarcomasAnnals of Oncology2014FreeViewJournalCancer treatment and care
Adolescents and Young Adults with Non-Hodgkin's Lymphoma: Slipping between the CracksActa Haematologica2014Free Abstract ViewJournalCancer treatment and carePsychosocial challenges and care
Acute Myeloid Leukemia in Adolescents and Young Adults: Challenging AspectsActa Haematologica2014Free Abstract ViewJournalCancer treatment and carePsychosocial challenges and care
Hematopoietic Stem Cell Transplantation in Adolescents and Young AdultsActa Haematologica2014Free Abstract ViewJournalCancer treatment and care
Adolescent and Young Adult Cancer SurvivalNational Cancer Institute2014FreeViewJournalResearch
The Challenging Aspects of Managing Adolescents and Young Adults with Hodgkin's LymphomaActa Haematologica2014Free Abstract ViewJournalCancer treatment and carePsychosocial challenges and care
Chronic myeloid leukemia in adolescents and young adults: patient characteristics, outcomes and review of the literature.Acta Haematologica2014Free Abstract ViewJournalCancer treatment and care
Incidence of Breast Cancer With Distant Involvement Among Women in the United States, 1976 to 2009Journal of the American Medical Association2013FreeViewJournalEpidemiology
"Cancer Treatments and Fertility-Your Options" for malesSeattle Children's Hospital2013FreeViewVideoFertility
The New Adolescents: An Analysis of Health Conditions, Behaviors, Risks, and Access to Services Among Emerging Young AdultsUniversity of Southern California2013FreeViewReportProgram DevelopmentEpidemiology
National Cancer Policy Forum/LIVESTRONG Workshop on Addressing the Needs of Adolescents and Young Adults with CancerInstitute of Medicine2013FreeViewReportGeneral
"Cancer Treatments and Fertility-Your Options" for femalesSeattle Children's Hospital2013FreeViewVideoFertility
When cancer comes earlyHartford Courant2013FreeViewMediaPsychosocial challenges and careFertilityPractical
In Treatment for Leukemia, Glimpses of the FutureNew York Times2012FreeViewMediaBiology and Genomics
Adolescents and Young Adults with Cancer: A Distinct Population of Patients Who Need to Be Treated DifferentlyASCO Post2012FreeViewMediaCancer treatment and carePsychosocial challenges and careFertility
Research challenges in adolescent and young adult cancer survivor researchCancer2011FreeViewJournalSurvivorship
Palliative care in adolescents and young adults with cancerCancer2011FreeViewJournalPalliative CarePsychosocial challenges and care
Active therapy and models of care for adolescents and young adults with cancerCancer2011FreeViewJournalProgram Development
Awareness and advocacy for adolescents and young adults with cancerCancer2011FreeViewJournalPsychosocial challenges and care
Oncofertility and preservation of reproductive capacity in children and young adultsCancer2011FreeViewJournalFertility
Opportunities and challenges of establishing a nationwide strategy for adolescents and young adults in Canada with cancerCancer2011FreeViewJournalProgram Development
Providing developmentally appropriate Psychosocial challenges and care care to adolescent and young adult cancer survivorsCancer2011FreeViewJournalPsychosocial challenges and care
Unique Characteristics of Adolescent and Young Adult Acute Lymphoblastic Leukemia, Breast Cancer, and Colon CancerJournal of the National Cancer Institute2011FreeViewJournalBiology and GenomicsCancer treatment and care
Critical issues in transition and survivorship for adolescents and young adults with cancersCancer2011FreeViewJournalSurvivorship
A review of Canadian health care and cancer care systemsCancer2011FreeViewJournalCancer treatment and care
Supplement: Adolescents and Young Adults with Cancer: Towards Better Outcomes in Canada (link to all articles)Cancer2011FreeViewJournalGeneral
PreambleCancer2011FreeViewJournalGeneral
Clinical and molecular features of papillary thyroid cancer in adolescents and young adultsCancer2011FreeViewJournalBiology and Genomics and GenomicsCancer treatment and care
Psychological, social, and behavioral issues for young adults with cancerCancer2011FreeViewJournalPsychosocial challenges and care
Outcomes and metrics: Measuring the impact of a comprehensive adolescent and young adult cancer programCancer2011FreeViewJournalCancer treatment and carePsychosocial challenges and care
The cancer is over, now what?Cancer2011FreeViewJournalSurvivorship
Economic Burden of Cancer in the United States: Estimates, Projections, and Future ResearchCancer Epidemiology, Biomarkers & Prevention2011FreeViewJournalEpidemiologyPractical
Cancer's Most Isolated PatientsLA Times2011FreeViewMediaGeneral
Experts Seek to Explain the Survival Gap in Adolescents and Young Adults with CancerASCO Post2011FreeViewMediaGeneral
Treatment of cancer in adolescents and young adults: is afforadbility a concern?Cancer2011FreeViewJournalPractical
"Good Times and Bald Times" 12-video AYA series on YouTubeSeattle Children's Hospital2011FreeViewVideosPsychosocial challenges and carePracticalFertility
Screening for cancer in children, adolescents, and young adultsCancer2011FreeViewJournalScreening and early detection
Youth excel: Towards a pan-canadian platform linking evidence and action for preventionCancer2011FreeViewJournalScreening and early detection
Targeted therapy in pediatric and adolescent oncologyCancer2011FreeViewJournalCancer treatment and care
Cancer genome variation in children, adolescents, and young adultsCancer2011FreeViewJournalBiology and Genomics
Adolescents, young adults, and cancerÑthe international challengeCancer2011FreeViewJournalGeneral
Impact of Young Age on Treatment Efficacy and Safety in Advanced Colorectal Cancer: A Pooled Analysis of Patients From Nine First-Line Phase III Chemotherapy TrialsJournal of Clinical Oncology2011FreeViewJournalCancer treatment and care
Adolescent and Young Adult Oncology Training for Health Professionals: A Position StatementJournal of Clinical Oncology2010FreeViewJournalTraining and Professional Education
Starting an Adolescent and Young Adult Program: Some Success Stories and Some Obstacles to OvercomeJournal of Clinical Oncology2010Free Abstract ViewJournalProgram Development
Brain Tumors: From Childhood Through Adolescence Into AdulthoodJournal of Clinical Oncology2010Free Abstract ViewJournalCancer treatment and care
Adolescent and Young Adult Oncology: An Emerging FieldJournal of Clinical Oncology2010FreeViewJournalGeneral
Adolescent and Young Adult Oncology Special Issue (link to all articles)Journal of Clinical Oncology2010Free Abstracts ViewJournalGeneral
"Too Young for Cancer" and Demanding ActionWall Street Journal2010FreeViewMediaScreening and early detection
Quality Cancer Care for Adolescents and Young Adults: A Position StatementJournal of Clinical Oncology2010FreeViewJournalCancer treatment and carePsychosocial challenges and careFertilityPractical
Clinical Pharmacology in the Adolescent Oncology PatientJournal of Clinical Oncology2010Free Abstract ViewJournalCancer treatment and care
Review of Adherence-Related Issues in Adolescents and Young Adults With CancerJournal of Clinical Oncology2010Free Abstract ViewJournalCancer treatment and carePsychosocial challenges and care
Been There, Done That, Wrote the Blog: The Choices and Challenges of Supporting Adolescents and Young Adults With CancerJournal of Clinical Oncology2010Free Abstract ViewJournalPsychosocial challenges and care
Starting an Adolescent and Young Adult Program: Some Success Stories and Some Obstacles to OvercomeJournal of Clinical Oncology2010Free Abstract ViewJournalProgram Development
Fertility Preservation in Adolescents and Young Adults With CancerJournal of Clinical Oncology2010Free Abstract ViewJournalFertility
Sex, Drugs, and Rock 'n' Roll: Caring for Adolescents and Young Adults With CancerJournal of Clinical Oncology2010Free Abstract ViewJournalPsychosocial challenges and careDecision-making and communication
Transition of Care for Young Adult Survivors of Childhood and Adolescent Cancer: Rationale and ApproachesJournal of Clinical Oncology2010Free Abstract ViewJournalSurvivorship
Role of Palliative Care in Adolescent and Young Adult OncologyJournal of Clinical Oncology2010Free Abstract ViewJournalPalliative Care
Acute Leukemia in Adolescents and Young AdultsSeminars in Oncology2009Free Abstract ViewJournalCancer treatment and careBiology and Genomics
Impact of Malignant Disease on Young Adults II (link to all articles)Seminars in Oncology2009Free Abstract ViewJournalGeneral
Testicular Cancer: A Prototypic Tumor of Young AdultsSeminars in Oncology2009Free Abstract ViewJournalCancer treatment and careBiology and Genomics
Melanoma in Pediatric, Adolescent, and Young Adult PatientsSeminars in Oncology2009Free Abstract ViewJournalCancer treatment and careBiology and Genomics
Lymphoma in Adolescents and Young AdultsSeminars in Oncology2009Free Abstract ViewJournalCancer treatment and careBiology and Genomics
Colorectal Cancer in Young AdultsSeminars in Oncology2009Free Abstract ViewJournalCancer treatment and careBiology and Genomics
Impact of Malignant Disease on Young Adults I (link to all articles)Seminars in Oncology2009Free Abstracts ViewJournalCancer treatment and carePsychosocial challenges and care
The Adolescence of Young Adult OncologySeminars in Oncology2009Free Abstract ViewJournalGeneral
Psychosocial Outcomes and Service Use Among Young Adults With CancerSeminars in Oncology2009Free Abstract ViewJournalPsychosocial challenges and care
Relative Lack of Conditional Survival Improvement in Young Adults With CancerSeminars in Oncology2009Free Abstract ViewJournalEpidemiology
Cancer of the Oral Cavity and Pharynx in Young Females: Increasing Incidence, Role of Human Papilloma Virus, and Lack of Survival ImprovementSeminars in Oncology2009Free Abstract ViewJournalEpidemiology
Sarcoma in the Young Adult Population: An International ViewSeminars in Oncology2009Free Abstract ViewJournalCancer treatment and careBiology and Genomics
Cancer in Young Adults 20 to 39 Years of Age: OverviewSeminars in Oncology2009Free Abstract ViewJournalGeneral
Identity, Image, and Sexuality in Young Adults With CancerSeminars in Oncology2009Free Abstract ViewJournalPsychosocial challenges and care
CAUTION! Consider Cancer: Common Symptoms and Signs for Early Detection of Cancer in Young AdultsSeminars in Oncology2009Free Abstract ViewJournalScreening and early detection
Thyroid Cancer in Young AdultsSeminars in Oncology2009Free Abstract ViewJournalCancer treatment and careBiology and Genomics
Breast Cancer Before Age 40 YearsSeminars in Oncology2009Free Abstract ViewJournalCancer treatment and careBiology and Genomics
Psychosocial Issues and Quality of LifeSeminars in Oncology2009Free Abstract ViewJournalPsychosocial challenges and care
The Unique Characteristics of Ovarian Carcinogenesis in the Adolescent and Young Adult PopulationSeminars in Oncology2009Free Abstract ViewJournalCancer treatment and careBiology and Genomics
Productivity Costs of Cancer Mortality in the United States: 2000-2020Journal of the National Cancer Institute2008FreeViewJournalEpidemiologyPractical
The distinctive biology of cancer in adolescents and young adultsNature Reviews Cancer2008Free Abstract ViewJournalBiology and Genomics
How Should We Value Lives Lost to Cancer?Journal of the National Cancer Institute2008FreeViewEditorialEpidemiology
Cancer Epidemiology in Older Adolescents and Young Adults 15 to 29 Years of Age, Including SEER Incidence and Survival: 1975-2000National Cancer Institute SEER Program/Children's Oncology Group2007FreeViewReportEpidemiology
Closing the Gap: A Strategic PlanLivestrong Young Adult Alliance2007FreeViewReportGeneral
Cancer in Adolescents and Young AdultsPediatric Oncology (Archie Bleyer and Ronald Duncan Barr, editors)2007Book for Purchase ViewBookGeneral
Closing the Gap: Research and Care Imperatives for Adolescents and Young Adults with CancerNCI Adolescent and Young Adult Oncology Progress Review Group2006FreeViewReportGeneral
Ethan Zohn Speaks at LIVESTRONG Young Adult AllianceTonicMediaSurvivor experience
Cancer's Orphan GenerationUS NewsMediaGeneral
Insights: A Community for Teens and Young AdultsBe the MatchFreeViewCommunityPsychosocial challenges and care
Estimates and Projections of Value of Life Lost From Cancer Deaths in the United StatesViewEpidemiologyPractical