Critical Mass: The Young Adult Cancer Alliance is the full-time federal advocacy arm of the entire adolescent and young adult cancer community. Our mission is to advance policies that will transform the United States cancer care and delivery system to better serve adolescent and young adult patients and survivors.
AliveAndKickn: Lynch Syndrome, other hereditary cancers, even other disorders are difficult to absorb and overcome. AliveAndKickn are looking to make a difference for you and others, both current and future with hereditary cancer. Part of that is helping you navigate the system, offer insights into options, share a smile, look for research trials, but most importantly, aggregate pertinent data to research potential cures. Genetics is taking huge strides almost every day. Precision medicine, immunotherapy and gene sequencing are the future.
Alliance for Fertility Preservation: The Alliance is made up of a team of professionals who have chosen to join together to advance the field of fertility preservation. Their members are recognized leaders with expertise in all aspects of fertility preservation including, oncology, reproductive endocrinology, urology, psychology, oncology nursing, and reproductive law. Their exclusive focus is fertility preservation for cancer patients.
Aunt Bertha, a PBC.: Aunt Bertha makes it easy for people facing social needs – and those who help others – to find and make referrals to appropriate programs and services for food, shelter, health care, work, financial assistance and more. It serves those working in healthcare, education, government, child welfare and more.
Bonnie J. Addario Lung Cancer Foundation: One of the largest philanthropies (patient-founded, patient-focused, and patient-driven) devoted exclusively to eradicating Lung Cancer through research, early detection, education, and treatment. The Foundation’s goal is to work to identify solutions and make timely and meaningful change and turn lung cancer into a chronically managed disease by 2023. The ALCF was established in 2006 as a and has raised over $30 million for lung cancer research and related programs.
Dana-Farber Cancer Institute: Their mission is to provide expert, compassionate care to children and adults with cancer while advancing the understanding, diagnosis, treatment, cure, and prevention of cancer and related diseases. As an affiliate of Harvard Medical School and a Comprehensive Cancer Center designated by the National Cancer Institute, the Institute also provides training for new generations of physicians and scientists, designs programs that promote public health particularly among high-risk and underserved populations, and disseminates innovative patient therapies and scientific discoveries to their target community across the United States and throughout the world.
First Descents: First Descents offers young adult cancer fighters and survivors a free outdoor adventure experience designed to empower them to climb, paddle and surf beyond their diagnosis, defy their cancer, reclaim their lives and connect with others doing the same. Each program is limited to 15 participants, ensuring individualized care, medical attention and an intimate experience with fellow survivors. First Descents programs are available to young adults with cancer regardless of their financial means. All meals, accommodations and program activities are provided free of charge, including travel scholarships, when needed.
Genentech: Genentech is a leading biotechnology company that discovers, develops, manufactures and commercializes medicines to treat patients with serious or life-threatening medical conditions. The company is among the world’s leading biotech companies, with multiple products on the market and a promising development pipeline.
HopeLab: Founded in 2001 with the idea to create a video game that would help kids fight cancer, HopeLab designs fun and engaging experiences to improve the health and well-being of kids and young adults. It believes that technology has the power to empower individuals – to support behavior change, enhance human connection, and increase our capacity for self-efficacy. And we believe that it can help make proven solutions more affordable, accessible and scalable.
Lacuna Loft: Lacuna Loft is a web-based nonprofit organization that encourages, empowers, and connects young adult cancer survivors and caregivers throughout the globe, 24/7. Lacuna Loft provides online wellness support resources, lifestyle encouragement, and peer support community that young adults need to overcome their challenging health and life circumstances, and thrive.
The Leukemia & Lymphoma Society (LLS): The mission of The Leukemia & Lymphoma Society is to cure leukemia, lymphoma, Hodgkin’s disease and myeloma, and improve the quality of life of patients and their families.
LIVESTRONG Foundation: Helping cancer survivors and their loved ones has been the goal from day one. LIVESTRONG believes in putting the survivor first, and that is why their tools and resources help ease the challenges of a cancer diagnosis. At LIVESTRONG, they fight for the more than 32.6 million people around the world affected by cancer now. It provides direct services to anyone affected by cancer; connect people and communities with the services they need; and call for state, national and world leaders to help fight this disease.
Moffitt Cancer Center: The Moffitt Cancer Center Foundation was founded in 1994 to support cancer research, patient care and education initiatives. Since then, it has pioneered breakthroughs for the future that promise greater progress in saving lives and reducing cancer to a highly treatable illness. Thanks to the generous donor community that embraces Moffitt, countless patients can now call themselves cancer survivors.
Mylan: Mylan is a global healthcare company focused on making high quality medicines available to everyone who needs them. They have one of the broadest and most diverse portfolios, with more than 7,500 marketed products that include prescription generic and brand-name medicines, and consumer healthcare products. Mylan healthcare services help patients to access products and adhere to medication regimens to help promote better health outcomes. They offer products in more than 165 countries and territories with a strong track record of developing new products, particularly complex and difficult-to-formulate medicines. Our approximately 50 plants around the world manufacture tens of billions of doses of medicine annually, and each site adheres to stringent quality standards, regardless of location.
MyLifeLine Cancer Connection: The mission of MyLifeLine.org is to empower cancer patients and caregivers to build an online support community of family and friends to foster connection, inspiration, and healing through free, personalized websites. MyLifeLine was founded in 2007 by Marcia Donziger, who was diagnosed with ovarian cancer in 1997, when she was 27 years old. The Internet existed at the time, but not with the fullness it does now. She recalls feeling overwhelmed by the volume of concern, during a time when she was struggling to fight the cancer inside her.
National Coalition for Cancer Survivorship: NCCS’ mission is to advocate for quality cancer care for all people touched by cancer. Founded by and for cancer survivors, NCCS created the widely accepted definition of survivorship and defines someone as a cancer survivor from the time of diagnosis and for the balance of life. NCCS has worked with legislators and policy makers to represent cancer patients and survivors in efforts to improve their quality of care and quality of life after diagnosis. Their unique niche in the cancer advocacy landscape is promoting policy change to ensure quality cancer care.
OHSU Knight Cancer Institute: The Knight Cancer Institute’s Adolescent and Young Adult (AYA) Oncology Program at OHSU provides services unique to young people undergoing cancer treatments, including fertility preservation, connecting with support groups and activities specific to your needs. This is the only program in Oregon, and one of a few in the U.S., exclusively dedicated to supporting adolescents and young adults diagnosed with cancer. The AYA program team, in conjunction with the Knight Cancer Institute’s team of skilled doctors, nurses and researchers is dedicated to developing more effective methods of diagnosis and treatment to assure longer, healthier lives for young people with cancer.
Ochsner Health System: The Adolescent and Young Adult Cancer and Survivorship Program at Ochsner provides treatment for patients ages 15 – 39 with most types of cancer. Researchers are discovering that many of the cancers that occur in this age group are biologically different than those seen at other ages. In addition, these patients have different medical, psychological and social needs than younger and older patients, and this program is designed to address these needs.
Patients Rising: Patients Rising is a 501c3 organization based in Washington, DC that advocates for patients’ rights and to fight for access to the medications they need. Patients Rising believes that connection is at the core of everything they do – and that this can best occur online and in-person at local, state, and global conferences, roundtable discussions, workshops, podcasts, webinars and webcasts. They are committed to directly engaging the patient community, along with physicians, health policy experts and allied healthcare professions to develop realistic, solution-oriented discussions so those impacted with cancer and other critical medical challenges will amplify their collective voice and create lasting impact on the future of healthcare in the United States.
Pelotonia: Founded in 2008, Pelotonia was established with the objective to fund life-saving cancer research. Pelotonia is a three-day experience that includes a weekend of cycling, entertainment and volunteerism. Pelotonia directs 100% of every rider-raised dollar to cancer research at The Ohio State University Comprehensive Cancer Center – James Cancer Hospital and Solove Research Institute.
Shire: Shire is the leading global biotechnology company focused on serving people with rare diseases. Founded in 1986 by a small team of entrepreneurs to seek out solutions to address a number of unmet medical needs, it has made significant strides in Alzheimer’s disease, ADHD and have recently acquired Baxalta which as a result have acquired three new therapeutic areas (hematology, immunology and oncology).
Smith Center for Healing and the Arts: Founded in 1996, Smith Center for Healing and the Arts (formerly Smith Farm) is a Washington, DC-based nonprofit health, education, and arts organization. Its mission is to develop and promote healing practices that explore physical, emotional, and mental wellness and lead to life-affirming changes. The Center offers programs for the community and specialize in serving people with cancer and utilizing the arts in healing.
Stupid Cancer: Founded in 2007 by Matthew Zachary, a young adult brain cancer survivor, Stupid Cancer has become the largest US-based charity that comprehensively addresses young adult cancer through advocacy, research, support, outreach, awareness, mobile health and social media. Stupid Cancer proudly supports a global network of patients, survivors, caregivers, providers and advocates to ensure that no one affected by young adult cancer go unaware of the age-appropriate resources they are entitled to so they can get busy living.
Teen Cancer America: Following in the footsteps of the highly developed and successful Teenage Cancer Trust – Teen and Young Adult Cancer Program out of the UK, Teen Cancer America is designed to help hospitals and healthcare professionals bridge the gap between pediatric and adult oncology care. Teen Cancer America aims to educate and support hospitals and outpatient facilities in the development of specialized units for this age group. The units are a place just for teens and young adults where the cancer experience is understood and the importance of living life through the cancer journey is nourished.
Testicular Cancer Society: The Testicular Cancer Society is a 501(c)(3) non-profit organization to raise awareness for the most common form of cancer in men age 15-35. We are dedicated to increasing awareness and education about the disease and providing support for fighters, survivors and caregivers.
TH!NK DIFFERENT Foundation: TH!NK DIFFERENT is dedicated not just one cause but to three: energy efficiency, affordable housing, and cancer treatment. These are the types of real-world problems that affect millions of people around the globe. TH!INK DIFFERENT‘s approach is truly innovative. By cutting the red tape and creating real solutions, TH!NK DIFFERENT is ready to make a real difference.
The Samfund: The Samfund provides support for young adult cancer survivors in the United States as they recover from the financial impact of cancer treatment. Through direct financial assistance and free online support and education, The Samfund helps young adults move forward towards their personal, professional, and academic goals. It is the first and largest nonprofit organization in the country that provides direct financial assistance and free online support and education to young adults, regardless of where they live or their specific cancer diagnosis. Since 2005, it has awarded over $1.7 million in grants
The Steven G AYA Cancer Research Fund: The SGAYA Cancer Research Fund funds: AYA Cancer Research in Northeast Ohio, educational and self-esteem building programs to help AYA Cancer survivors and their families address the issues surrounding cancer, family and patient social support, and AYA Cancer Advocacy and Awareness. Its Wellness Program provides healthy snacks for PAYA Cancer in-patients and the BE CALM STAY STRONG PACKAGE provides health and wellness items to assist with relaxation and comfort. All items/food/books/etc are distributed under the direct supervision of Hospital Social Workers.
The Ulman Cancer Fund for Young Adults: UCF’s mission is to changes lives by creating a community of support for young adults and their loves ones, as they fight cancer and embrace survivorship.
University of North Carolina: Lineberger Comprehensive Cancer Center: Is a cancer research and treatment center at the University of North Carolina at Chapel Hill. UNC Lineberger’s clinical base is the N.C. Cancer Hospital, the only public comprehensive cancer center in the state of North Carolina. As one of only 47 National Cancer Institute-designated Comprehensive Cancer Centers, UNC Lineberger was rated as exceptional – the highest category – by the National Cancer Institute.
Yale School of Medicine: The adolescent young adult (AYA) oncology program is exclusively dedicated to supporting adolescents and young adults, ages 13 and up. Integrating the resources of Yale-New Haven Children’s Hospital and Smilow Cancer Hospital at Yale-New Haven, patients receive coordinated care, including fertility counseling, education, insurance, and social and emotional support.
The Young Survival Coalition: Young Survival Coalition (YSC) is the premier organization dedicated to the critical issues unique to young women who are diagnosed with breast cancer. YSC offers resources, connections and outreach so women feel supported, empowered and hopeful. Young Survival Coalition (YSC) was founded in 1998 by three young women who were under the age of 35 when diagnosed. Today, YSC is the go-to organization for young women facing a breast cancer diagnosis.
- Open in Twitter Do you want a list of some of the top questions to ask? Check out https://t.co/DEyChJnmsc #AYACancer #AYAMissionControl 18 hours ago
- Open in Twitter No topic is off limits for Donna Fisher. RT @cure_magazine story to support an #AYAcancer standard of care.… https://t.co/giNSr4Eh60 20 hours ago
- Open in Twitter Join @heycriticamass for a town hall about #AYAcancer research & clinical trials on 9/7 in DC. More info at… https://t.co/WfFeftToPp 23 hours ago
- Open in Twitter RT @TheSamfund: .@heycriticalmass CEO @katehoughtonAYA shares her AYA cancer story on @HuffPost (and our data gets a shout out)! #ayacsm ht… 1 day ago
- Open in Twitter RT @FirstDescents: FD Alum Allison "Corduroy" Bailey Olson was featured by @heycriticalmass in this informative healthcare story: https://t… 1 day ago
- Open in Twitter This is the part of cancer that no one wants to talk about but we are going to: https://t.co/xNCikt0137 #AYACancer #AYAMissionControl 2 days ago
- Open in Twitter Alliance member @TCSociety teams up with @Rockies pitcher @CBettis35, an #AYAcancer survivor… https://t.co/Wkms4W5x3K 2 days ago
- Open in Twitter New York Times: Too many trials, too few patients... Not for #AYAcancer patients. https://t.co/oGGzjwQcVk… https://t.co/rx7jWBAA28 2 days ago
- Open in Twitter Can you take five minutes and tell us how student loans impacted your #AYAcancer care and survivorship? https://t.co/5DgerpwmIS 3 days ago
- Open in Twitter Just because there isn’t any evidence of the disease, doesn’t mean care ends. Here's what to look out for https://t.co/vUWJGQoCQy #AYAcancer 3 days ago
- Open in Twitter Why google and print resources for AYA patients & survivors when you can add Mission Control to your website?… https://t.co/pziRVPBnBP 3 days ago
- Open in Twitter Ever used Mission Control? Give host & Alliance member @AuntBertha some love: https://t.co/LMlkeA35NY https://t.co/PPTUkFssp0 4 days ago